What
inspired you to get involved in the Alzheimer’s Association?
July
4th, 2010 was a day of dual independence for my family, as it was
not only a celebration of independence for our country, but it was also the day
that my grandfather was finally independent from Alzheimer’s disease, having
died silently in his sleep early that morning.
What
can you tell us about your grandfather before dementia?
My
grandfather, Mahlon “Bill” Adams, was born in a small town in Kansas in 1928
and grew up the third of four boys. Having grown up with no sisters, he
had four daughters of his own and no sons. Of those four daughters, they all
bore my grandfather grandsons, with the exception of one girl: me.
Growing up as the only granddaughter automatically forged a very special bond
between Papa and me. He was a cabinet builder, and he would often build
me things as presents. One year he built me an amazing dollhouse (that I
still have), and another time he built me a broomstick horse that he decided
should be named Plug.
Always
the jokester, he actually earned his nickname Bill after Wild Bill Hickock
because of the pranks he was always pulling. As a child I had a favorite
blankie that he would always steal from me, and then he would shuffle off and
snicker over our game while I cried for him to give it back. If I was
touching my grandma, I was on “safe base” and he had to release my blanket from
his possession. After several years of this, I finally got fed up and
took out a pair of scissors and cut him a small square and said, “Here!
Now you have your own and don’t need to steal mine!” A bit dumbfounded by
my cleverness and vivacity, he promptly pulled out his wallet and secured the
square in a picture sleeve inside and he carried it around with him ever after.
Once
your grandfather was diagnosed, how did it affect you?
When
my grandfather was first diagnosed with Alzheimer’s, I was frankly in
denial. In the early parts of his journey with the disease I was away at
college, and I was more selfishly focused on living out my last days as a kid
before entering the real world than I was about my grandfather. Then, a
year after I graduated I moved across the country to New York, putting even
more distance – both literally and figuratively – between myself and Papa’s
ever-declining health. When my mom would call and update me on what was
going on with him, I was either too busy living my life to fully grasp what was
going on, or was just too scared to try to understand.
Things
really hit me hard in his last year as I learned of his various stages of
decline: he couldn’t make it to the bathroom in time and had an accident, he
couldn’t dress himself anymore, he was losing excessive amounts of weight, he
was sleeping all the time. Hearing all of these things finally woke me up
as to what was happening and not a day went by that I didn’t cry, because I
knew the man I had known and loved was no longer, and I felt that seeing him in
such a fragile state face-to-face would tarnish all the strong and wonderful
memories I had of him.
Why
do you participate?
Unfortunately
when Papa reached the obsessive counting and organizing phase that is common as
patients lose their memory, the little blankie swatch I had given him got
lost.
Fast
forward to the summer of 2012… I was about to get married, which is of course a
very exciting thing, but the fact that Papa never got to meet my future husband
was still weighing on me. I had planned to wear my grandmother’s wedding
earrings and I went upstairs at my parents’ house to get them out. In a
box they were tucked next to a card that I had not remembered ever having
seen. I opened it, and it was a note my Papa had written me ten years
earlier, with a piece of his square of the blankie pinned to it. As I
started reading the note that told of how he would always be with me as long as
I had half of his blanket square, I couldn’t help but feel he was speaking
those words right there in front of me for the very first time. And THAT
is why I participate.
Rhys Loring is a Team Brunette veteran player who was unable to return for the 2013 season due to injury. She continues her participation through the Steering Committee.